My Story: Not Giving Up

24WWIQ1SOKAs soon as I got home the evening after our first high-risk ultrasound, I started looking up ectopia cordis. What was it, and why did it happen? Was there anything that we could do? I wasn’t about to just give up so easily on saving my baby.

I learned that this condition was basically just the heart growing outside the chest somehow. There are different ways that ectopia cordis can happen. The high-risk doctor that we saw seemed to indicate something about amniotic band syndrome, a phenomenon where the baby gets tangled up in sticky bands that form in the amniotic sac. These bands can prevent certain parts of the body from forming correctly, usually just a finger or foot. In our case, the band wrapped itself around our baby’s abdomen and chest.

“We have to at least look into it, Sweetie. We can’t just let her die.” I furrowed my eyebrows at Kenny. He nodded immediately. We would question and find more opinions from specialized doctors.

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My Story: Part 3


“I’m very sorry,” the doctor said.

I blinked hard, feeling as if an apple were stuck in my throat. I looked at Kenny, whose face was also crinkling into sorrow, and I began to shake all over with tears spilling down my face. I just kept thinking how much I felt sorry for him. He had to endure such pain because I couldn’t sustain a child.

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My Story: Part 2

Although I had so casually dismissed the TA’s comment, I kept praying over the next few hours that everything would be all right. My heart thumped against my chest. What would this mean for my sweet baby?

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My Story

It was the day before Thanksgiving, and my mind was swirling with plans for dinner with family and friends. I had been so busy and exhausted from substitute teaching that I hadn’t thought of a good way to announce the baby’s gender yet. My parents would be at our house on Wednesday, and our friends Toby and Amie would join us on Thursday.

“I can’t believe this day is finally here!” I squealed. Kenny chuckled as he steered our old car onto the highway. My heart fluttered as I thought about the little baby curled inside me. What was its gender? We pulled into the parking lot and skipped inside the office, brimming with joy.

“I’m excited to go this time. This pregnancy hasn’t seemed real to me yet since I missed the first ultrasound.” Kenny rubbed his clammy hands into mine. I had never seen him this nervous.

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